Saturday, September 12, 2009

This Blog...

You may be wondering if it's such a difficult time in your life, then why have a blog? But this particular blog is something Joe and I had planned to start for our family long before we received baby Luke's diagnosis.  We wanted to be able to share and remember all of our adventures as a family and include loved ones both near and far who were interested in seeing what we were up to. Obviously, we never imagined that our little family blog would begin with such heartbreaking content!  But it's what is happening with our family nonetheless..so....

We want this to be a way for friends and family who have invested in our lives and Luke's life to be able to check in and see how he's doing, how things are going for us and what we are experiencing and learning.  While we so appreciate everyone's prayers and outpouring of love for our family, we also know that it is difficult to keep everyone updated all the time, and that you may feel awkward about asking or calling or bringing up the subject of Luke, so we figured this would be a nice way for people to know how we are doing and keep up on the latest news with our little family without Joe and I sending you tons of emails or making phone calls to people who may not actually want to know what is going on any longer!

Our sweet Luke is with us for only these very few precious days, weeks and months and so it is with complete love that we begin this blog sharing with you God's blessing of our beloved first child. We invite you to share in our life and these days with our sweet son and to help us honor and cherish his presence here with us.  We thank you for reading this and being willing to walk beside us on this journey. Please always feel free to drop us a comment, a note or a phone call as it is truly a blessing to us and reminds us that we are not alone.

Much, much love to you,
Joe and Sarah

1 comment:

  1. Dear Sarah,

    Thank you for sharing your sweet Luke with us. I so understand what you are going through. I too started my blog about Darcy for the same reason. We as parents of terminally ill children are forced to start our relationship with our babies now. There is no time to wait or lose. My Darcy had Trisomy 18 and only lived 15 days. Since we didn't know if she would even make it term, we also wanted to document everything. I learned along the way that we are not guaranteed that the natural order of things like parents outliving our children will happen but we are guaranteed that God will never leave us nor forsake us. That became the most powerful truth to me. We are praying for you.

    God bless,

    Tracy Ramos

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